RARE News

RARE News

5th International Scientific Congress on Spinal Muscular Atrophy (SMA)

By admin

2 March 2026

RARE News

OpalMedica launches patient platform to help shape the future of rare disease detection

By admin

28 February 2026

RARE News

RDCom: The new clinical AI that triples diagnostic effectiveness in Rare Diseases

By admin

28 February 2026

RARE News

Rare Disease Day 2026 highlights global inequities and amplifies youth voices in call for lasting change

By Becky Pender, RARE Revolution

27 February 2026

RARE News

Charity training aims to bridge care gap for rare neurological conditions

By admin

23 February 2026

RARE News

American Behçet’s Disease Association’s Pamela Price celebrates Rare Disease Day by defying the odds as 5-time ASICS Los Angeles Marathon host

By admin

13 February 2026

RARE News

New report released highlights the neglect of hereditary brain aneurysms and calls for urgent action to transform care

By admin

13 February 2026

RARE News

Global Liver Institute’s fifth #RareAware campaign puts early detection at the centre of care

By admin

9 February 2026

RARE News

CureDuchenne announces educational events for Duchenne and Becker muscular dystrophy families and caregivers

By admin

9 February 2026

RARE News

BEACONS selects seven sites, finalises gene list for genomic newborn screening study

By admin

28 January 2026

RARE News

The Remarkable Life of Ibelin to Receive EURORDIS Black Pearl Media and Awareness Raising Award

By admin

22 January 2026

RARE News

Sickle Cell Disease Association of America names Folk-Nagua to board

By admin

20 January 2026

RARE News

Landmarks illuminate purple and blue for Feeding Tube Awareness Week 2026

By admin

20 January 2026

RARE News

Kawasaki disease misdiagnoses are rising: another child nearly missed

By CONTRIBUTOR

8 January 2026

RARE News

Patient organisation Cure HSPB8 adopts new name: Cure MFM13

By CONTRIBUTOR

8 December 2025

RARE News

The Muscle Help Foundation and its patron, Lorraine Kelly, call on supporters to donate in the UK’s biggest public fundraiser, the ‘Big Give Christmas Challenge’

By CONTRIBUTOR

8 December 2025

RARE News

Charity raises crucial funds for fight against rare brain disease

By CONTRIBUTOR

4 December 2025

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