Press releases

Press releases

Blueprint Medicines reports clinical data highlighting leadership in developing targeted treatment options for patients with systemic mastocytosis

By Rebecca Pender

22 December 2022

Press releases

Zynerba Pharmaceuticals announces publication of data from phase 3 CONNECT-FX study of Zygel™ in the Journal of Neurodevelopmental Disorders

By Rebecca Pender

20 December 2022

Press releases

CureDuchenne raises more than $1.5 million at eighth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy

By Rebecca Pender

8 December 2022

Press releases

NFL players spotlight Sickle Cell Disease Association of America

By Rebecca Pender

7 December 2022

Press releases

Winners of Gene People Awards 2022 announced

By Rebecca Pender

16 November 2022

Press releases

CureDuchenne launches Occupational therapist certification programme to improve care for individuals with Duchenne muscular dystrophy

By Rebecca Pender

20 October 2022

Press releases

World Duchenne Organization announces Accredited Duchenne Centers Programme

By Rebecca Pender

7 October 2022

Press releases

Sickle Cell Disease Association holds 50th annual national convention virtually

By Rebecca Pender

5 October 2022

Press releases

American Kidney Fund’s Unknown Causes of Kidney Disease Coalition set to advance policies on rare kidney diseases

By Rebecca Pender

26 September 2022

Events

The Dash Alliance and RARE Revolution Magazine – levelling up for RARE

By Rebecca Pender

21 September 2022

Press releases

The 2022 Jeans For Genes grant programme is now open and inviting applications

By Rebecca Pender

1 September 2022

Press releases

Sickle Cell Disease Association celebrates National Sickle Cell Awareness Month

By Rebecca Pender

31 August 2022

Press releases

Rare Disease Nurse Network (RDNN) announces registration as a charity with the UK Charity Commission (Registered Charity Number 1199654).

By Rebecca Pender

22 August 2022

Press releases

Parents of Children with Narcolepsy Invited to Participate in Registry

By Rebecca Pender

8 August 2022

Press releases

Shining the light on eosinophilic diseases

By Rebecca Pender

5 August 2022

Charity & advocacy

ANGEL AID Unveils Raregivers™ Global Mental Health Initiative for Caregivers, Patients and Professionals

By Rebecca Pender

12 July 2022

Charity partner news

Teddington Trust and XPSG – coming together with a new identity for a new impact driven mission

By Rebecca Pender

1 July 2022

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