Press releases

Press releases

New online course for medics launched today: exploring mental health and rare disease

By admin

4 July 2023

Press releases

Sickle Cell Disease Association of America teams with MedicAlert Foundation to improve emergency outcomes during sickle cell crises

By admin

28 June 2023

Press releases

102,000 newborns could be saved every year if proper screening were in place – celebrating International Neonatal Screening Day

By admin

28 June 2023

Press releases

Rare Care Centre Australia impact report

By admin

26 June 2023

Press releases

Pioneering polar adventurer and charity CEO of The Muscle Help Foundation charity to be awarded MBE for services to people with muscular dystrophy

By admin

26 June 2023

Press releases

An important milestone for the Duchenne community

By admin

23 June 2023

Press releases

Charity survey shows 60% of people with PSP and CBD are misdiagnosed

By Rebecca Pender

17 June 2023

Press releases

Cure Mito Foundation launches resource on Leigh syndrome

By admin

9 June 2023

Press releases

DNA sequencing in newborns reveals years of actionable findings for infants and families

By admin

5 June 2023

Press releases

Global Genes’ RARE-X issues open call to researchers to participate in the Inaugural Xcelerate RARE Challenge

By admin

31 May 2023

Press releases

American Kidney Fund will host cystinosis camp as part of national virtual camp for children and teens with kidney disease

By admin

25 May 2023

Press releases

The Muscle Help Foundation launches 20th anniversary celebrations

By admin

16 May 2023

Press releases

Global Genes announces partnership with CureJM Foundation to expand support in rare disease community for mental health-related challenges

By admin

16 May 2023

Press releases

The Twin Run – supporting high-risk multiple birth parents and twin research

By admin

12 May 2023

Press releases

CureDuchenne partners with PicnicHealth to advance research and simplify patient experience by incorporating electronic health records into data-integrated biobank

By admin

5 May 2023

Press releases

Specialty pharma expert adopts name of global parent to reflect breadth of offer that brings a rare and special perspective to the market

By admin

2 May 2023

Press releases

PIP-UK Poland syndrome charity launches new podcast series: What about PS? A Poland Syndrome Podcast

By Rebecca Pender

30 April 2023

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