RARE News

RARE News

Blizzard Entertainment® Raises Over $2 Million for CureDuchenne through World of Warcraft ® charity pet program, funding lifesaving Duchenne muscular dystrophy research

By CONTRIBUTOR

12 February 2025

RARE News

CureDuchenne announces educational events for families and caregivers of individuals with Duchenne or Becker muscular dystrophy

By admin

6 February 2025

RARE News

Neuro-orthoptics in progressive supranuclear palsy

By admin

1 February 2025

RARE News

Sepsis Research FEAT urges vigilance against sepsis this winter

By CONTRIBUTOR

28 January 2025

RARE News

Landmarks illuminate purple and blue for feeding tube awareness

By CONTRIBUTOR

28 January 2025

RARE News

Medics For Rare Disease – New year, new name, new strategy

By admin

10 January 2025

RARE News

Rare Patient Voice has rewarded patients and caregivers $15 Million+ for their participation in research

By admin

9 January 2025

RARE News

New study reveals severe lack of support for Dravet Syndrome carers

By admin

3 December 2024

RARE News

DEBRA partners with NHS England to better understand epidermolysis bullosa (EB)

By admin

11 November 2024

RARE News

HBA Support achieves registered charity status

By admin

7 November 2024

RARE News

DREAMS: a year of innovation and progress in the quest for neuromuscular disease therapies

By admin

31 October 2024

RARE News

Walk with WAPO through the Experiences of People Living with Acromegaly

By admin

30 October 2024

RARE News

MENA Congress for Rare Diseases 2025

By admin

29 October 2024

RARE News

CureDuchenne partners with Blizzard Entertainment and World of Warcraft for limited-time charity pet program

By admin

29 October 2024

RARE News

PRISMS Creates Awareness for Smith-Magenis Syndrome on Smith-Magenis Syndrome Awareness Day

By admin

28 October 2024

RARE News

Laura MacNeill named new CEO of CMT Research Foundation

By admin

23 October 2024

RARE News

It’s CMT Awareness Month during October, although less than 10% of the UK population have heard of CMT (according to a survey)

By admin

22 October 2024

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