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RDD Spotlight edition - Hereditary angioedema
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Press releases
Press releases
Blueprint Medicines reports clinical data highlighting leadership in developing targeted treatment options for patients with systemic mastocytosis
By Rebecca Pender
22 December 2022
Press releases
Zynerba Pharmaceuticals announces publication of data from phase 3 CONNECT-FX study of Zygel™ in the Journal of Neurodevelopmental Disorders
By Rebecca Pender
20 December 2022
Press releases
CureDuchenne raises more than $1.5 million at eighth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy
By Rebecca Pender
8 December 2022
Press releases
NFL players spotlight Sickle Cell Disease Association of America
By Rebecca Pender
7 December 2022
Press releases
Winners of Gene People Awards 2022 announced
By Rebecca Pender
16 November 2022
Press releases
CureDuchenne launches Occupational therapist certification programme to improve care for individuals with Duchenne muscular dystrophy
By Rebecca Pender
20 October 2022
Press releases
World Duchenne Organization announces Accredited Duchenne Centers Programme
By Rebecca Pender
7 October 2022
Press releases
Sickle Cell Disease Association holds 50th annual national convention virtually
By Rebecca Pender
5 October 2022
Press releases
American Kidney Fund’s Unknown Causes of Kidney Disease Coalition set to advance policies on rare kidney diseases
By Rebecca Pender
26 September 2022
Events
The Dash Alliance and RARE Revolution Magazine – levelling up for RARE
By Rebecca Pender
21 September 2022
Press releases
The 2022 Jeans For Genes grant programme is now open and inviting applications
By Rebecca Pender
1 September 2022
Press releases
Sickle Cell Disease Association celebrates National Sickle Cell Awareness Month
By Rebecca Pender
31 August 2022
Press releases
Rare Disease Nurse Network (RDNN) announces registration as a charity with the UK Charity Commission (Registered Charity Number 1199654).
By Rebecca Pender
22 August 2022
Press releases
Parents of Children with Narcolepsy Invited to Participate in Registry
By Rebecca Pender
8 August 2022
Press releases
Shining the light on eosinophilic diseases
By Rebecca Pender
5 August 2022
Charity & advocacy
ANGEL AID Unveils Raregivers™ Global Mental Health Initiative for Caregivers, Patients and Professionals
By Rebecca Pender
12 July 2022
Charity partner news
Teddington Trust and XPSG – coming together with a new identity for a new impact driven mission
By Rebecca Pender
1 July 2022
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