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RARE News
RARE News
Sickle Cell Disease Association recognises Sickle Cell Awareness Month
By admin
2 September 2024
RARE News
Exercise is medicine for people living with PSP & CBD
By admin
28 August 2024
RARE News
CureDuchenne expands global initiatives andspreads awareness for World Duchenne Day 2024
By admin
23 August 2024
RARE News
Ladies Luncheon Newport Beach to debut at Shady Canyon Golf Club on October 15 benefiting CureDuchenne
By admin
20 August 2024
RARE News
Introducing the Vascular Voice Network
By admin
12 August 2024
RARE News
PSP Association increases support to families
By admin
12 August 2024
RARE News
Nod to Naz art exhibit opens in California
By admin
9 August 2024
RARE News
Timothy Syndrome Alliance (TSA) looks to recruit Trustee
By admin
2 August 2024
RARE News
CMT Research Foundation invests in project at nationwide children’s hospital to develop improved gene therapy delivery systems for several types of CMT
By admin
1 August 2024
RARE News
Our Voice, Our Rights, Our Future: The ALLIANCE report and video explores key themes and feedback from its 2024 annual conference
By admin
31 July 2024
RARE News
Innov4-ePiK: Innovative diagnostic and therapeutic approaches in potassium channel developmental and epileptic encephalopathies (K-DEEs) using 4P for medicine
By admin
29 July 2024
RARE News
cTAP Study indicates Duchenne muscular dystrophy clinical trial enrollment criteria should expand beyond ambulatory status
By admin
29 July 2024
RARE News
Landmarks shine pink and purple for National Eosinophilic Week
By admin
29 July 2024
RARE News
The CMT Research Foundation’s 2024 Global CMT Research Convention to gather renowned scientific experts and patients to discuss status of treatments and cures for Charcot-Marie-Tooth (CMT) disease
By admin
19 July 2024
RARE News
NHL All-Star Ryan Getzlaf returns to the links for the 13th Annual Getzlaf Golf Shootout on September 13-14, benefiting CureDuchenne
By admin
17 July 2024
RARE News
Challenges and priorities for the PSP and CBD community: Insights from Mark Jackson
By admin
12 July 2024
RARE News
The CMT Research Foundation to launch grant program to support young investigators working on CMT
By admin
12 July 2024
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