RARE News

RARE News

Make your voice heard: Participate in the Rare Barometer Survey on the impact of living with a rare diseases on everyday life

By admin

2 September 2024

RARE News

Sickle Cell Disease Association recognises Sickle Cell Awareness Month

By admin

2 September 2024

RARE News

Exercise is medicine for people living with PSP & CBD

By admin

28 August 2024

RARE News

CureDuchenne expands global initiatives andspreads awareness for World Duchenne Day 2024

By admin

23 August 2024

RARE News

Ladies Luncheon Newport Beach to debut at Shady Canyon Golf Club on October 15 benefiting CureDuchenne

By admin

20 August 2024

RARE News

Introducing the Vascular Voice Network

By admin

12 August 2024

RARE News

PSP Association increases support to families

By admin

12 August 2024

RARE News

Nod to Naz art exhibit opens in California

By admin

9 August 2024

RARE News

Timothy Syndrome Alliance (TSA) looks to recruit Trustee

By admin

2 August 2024

RARE News

CMT Research Foundation invests in project at nationwide children’s hospital to develop improved gene therapy delivery systems for several types of CMT

By admin

1 August 2024

RARE News

Our Voice, Our Rights, Our Future: The ALLIANCE report and video explores key themes and feedback from its 2024 annual conference

By admin

31 July 2024

RARE News

Innov4-ePiK: Innovative diagnostic and therapeutic approaches in potassium channel developmental and epileptic encephalopathies (K-DEEs) using 4P for medicine

By admin

29 July 2024

RARE News

cTAP Study indicates Duchenne muscular dystrophy clinical trial enrollment criteria should expand beyond ambulatory status

By admin

29 July 2024

RARE News

Landmarks shine pink and purple for National Eosinophilic Week

By admin

29 July 2024

RARE News

The CMT Research Foundation’s 2024 Global CMT Research Convention to gather renowned scientific experts and patients to discuss status of treatments and cures for Charcot-Marie-Tooth (CMT) disease

By admin

19 July 2024

RARE News

NHL All-Star Ryan Getzlaf returns to the links for the 13th Annual Getzlaf Golf Shootout on September 13-14, benefiting CureDuchenne

By admin

17 July 2024

RARE News

Challenges and priorities for the PSP and CBD community: Insights from Mark Jackson

By admin

12 July 2024

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