RARE News

RARE News

Europe’s rare disease community sets out Blueprint for coordinated EU action

By admin

22 October 2026

RARE News

Glycogen Storage Disease Awareness Week 19-25 October 2026

By admin

22 October 2026

RARE News

Whittlebury Park marking its 15th year hosting the Muscle Help Foundation’s flagship Porsche Muscle Dream Experience

By admin

12 October 2026

RARE News

SMA community puts its priorities at the heart of future research

By admin

9 October 2026

RARE News

New research aims to build evidence base for braille food labelling across the UK

By admin

9 October 2026

RARE News

Sickle Cell Disease Association of America Inc. hosts externally led patient-focused drug development meeting on sickle cell disease

By admin

2 October 2026

RARE News

CMTUK celebrates 40 years of supporting those living with a rare and little-known disability

By CONTRIBUTOR

2 October 2026

RARE News

15th annual CureDuchenne golf shootout raises over $700,000 to advance Duchenne muscular dystrophy research

By CONTRIBUTOR

1 October 2026

RARE News

One community, one cause: translating global connections into action.

By CONTRIBUTOR

28 September 2026

RARE News

New UK charity launches to support people affected by Hirschsprung’s disease

By CONTRIBUTOR

22 September 2026

RARE News

Living beyond the diagnosis: filmmaker Antoinette Mooney launches A Hero’s Voice Kickstarter to bring rare disease stories to animation

By CONTRIBUTOR

16 September 2026

RARE News

SMA Europe examines patient journeys in SMA through pan-European patient experience survey.

By CONTRIBUTOR

16 September 2026

RARE News

Sickle Cell Disease Association of America Inc. holds annual convention in North Carolina

By Holly Robinson

14 September 2026

RARE News

Parliament to host launch of Rare4Schools and signing of national call to action tackling education and health inequalities for children with rare diseases

By CONTRIBUTOR

9 September 2026

RARE News

International conference and ultra-rare research on Ring20 epilepsy set for Coventry

By admin

3 September 2026

RARE News

Rare disease nonprofit celebrates 30 years

By admin

27 August 2026

RARE News

Muscle Help Foundation becomes title partner of South East Powerchair Football League

By admin

21 August 2026

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