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Author:
admin
RARE News
Rare Disease Nurse Network (RDNN) announces registration as a charity with the UK Charity Commission (Registered Charity Number 1199654).
By admin
22 August 2022
RARE News
Parents of Children with Narcolepsy Invited to Participate in Registry
By admin
8 August 2022
RARE News
Shining the light on eosinophilic diseases
By admin
5 August 2022
Rare insights
Teddington Trust and XPSG – coming together with a new identity for a new impact driven mission
By admin
1 July 2022
RARE News
Gene People celebrates their first anniversary!
By admin
6 June 2022
RARE News
CureDuchenne hosts conversation with Pfizer to discuss opening of first U.S. sites in phase 3 trial of investigational gene therapy for ambulatory patients with Duchenne muscular dystrophy
By admin
26 May 2022
RARE News
Lace up to raise awareness of PSP and CBD: PSPA relaunches fun campaign to raise awareness of rare brain conditions progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD)
By admin
23 May 2022
RARE News
World Orphan Drug Alliance – combining forces to reach patients with rare diseases across the globe
By admin
23 May 2022
RARE News
The World Orphan Drug Congress USA Boston July 11-13
By admin
23 May 2022
RARE News
GARDIAN Registry for types 2 & 3 Gaucher disease is now open for registrations
By admin
17 May 2022
RARE News
Advocacy in Hemophilia Series: Event 1: Equity of Access in Hemophilia
By admin
12 May 2022
RARE News
Conference to pave the way for the next decade of rare diseases
By admin
11 May 2022
RARE News
National health charity CMTUK is to host annual conference on May 6th-7th
By admin
29 April 2022
RARE News
Undiagnosed Day 2022
By admin
28 April 2022
RARE News
California mental health initiative to fight hidden sickle cell symptoms
By admin
8 April 2022
Rare insights
Medics4RareDiseases joins forces with Bionical Emas to launch new online training
By admin
5 April 2022
Rare insights
National charity MPS Society encourages the public to spread awareness about rare genetic disease
By admin
4 April 2022
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