RARE News

National health charity, CMTUK, is to host Charcot-Marie-Tooth conference on 21–22 April 2023

By admin

21 April 2023

RARE News

May Movement Challenge – Free adaptive and accessible online exercise

By admin

17 April 2023

RARE News

8th annual RARE Drug Development Symposium – May 1-3, 2023

By admin

7 April 2023

RARE News

Rare disease warrior Pamela Price ran 340 miles from LA to Las Vegas with Team Unlimited Women

By admin

28 March 2023

RARE News

The Patient Centricity & Engagement Conference – 10th May – London

By admin

17 March 2023

RARE News

The Pharma Social Media Conference – 11th May – London

By admin

17 March 2023

RARE News

Sickle Cell Disease Association of America to promote clinical trials

By admin

16 March 2023

RARE News

RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’

By admin

28 February 2023

RARE News

Operationalize: Expanded Access Programs Summit (March 21-23, 2023, Boston, MA)

By admin

24 February 2023

RARE News

Celebrating Rare Disease Day and 40 years of the Orphan Drug Act advocating for rare disease patients and their families

By admin

22 February 2023

RARE News

Project Sebastian is pleased to announce our second annual rare warrior 5 x 5 challenge!

By admin

17 February 2023

RARE News

Three small research grants awarded

By admin

17 February 2023

RARE News

CureDuchenne strengthens philanthropic business development with addition of vice president of corporate and donor relations

By admin

16 February 2023

RARE News

Sure announced as headline sponsor for Parallel Windsor 2023

By admin

13 February 2023

RARE News

Shining the light on tube feeding

By admin

5 February 2023

RARE News

From SMA Europe: We are excited to announce that our OdySMA project is going live!

By admin

1 February 2023

RARE News

Raising awareness and celebrating people with craniofacial differences

By admin

24 January 2023