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RARE News

World Orphan Drug Alliance – combining forces to reach patients with rare diseases across the globe

By admin
23 May 2022

RARE News

The World Orphan Drug Congress USA Boston July 11-13

By admin
23 May 2022

RARE News

GARDIAN Registry for types 2 & 3 Gaucher disease is now open for registrations

By admin
17 May 2022

RARE News

Advocacy in Hemophilia Series: Event 1: Equity of Access in Hemophilia

By admin
12 May 2022

RARE News

Conference to pave the way for the next decade of rare diseases

By admin
11 May 2022

RARE News

National health charity CMTUK is to host annual conference on May 6th-7th

By admin
29 April 2022

RARE News

Undiagnosed Day 2022 

By admin
28 April 2022

RARE News

California mental health initiative to fight hidden sickle cell symptoms

By admin
8 April 2022

Rare insights

Medics4RareDiseases joins forces with Bionical Emas to launch new online training

By admin
5 April 2022

Rare insights

National charity MPS Society encourages the public to spread awareness about rare genetic disease

By admin
4 April 2022

RARE News

Global non-profit CureDuchenne announces futures national conference for the Duchenne muscular dystrophy community to be held May 27–29

By admin
1 April 2022

RARE News

Mental health and care navigation top list of needs for people living with neurodegenerative diseases at Adira Foundation congress

By admin
28 March 2022

RARE News

Mississippi becomes first state in 2022 to sign newborn screening legislation

By admin
17 March 2022

RARE News

New research released with recommendations for improving psychological support at the point of a rare disease diagnosis

By admin
10 March 2022

RARE News

Myhre Syndrome Foundation awards $150,000 in grants

By admin
3 March 2022

RARE News

Millions of people with rare diseases to benefit from faster diagnosis and better access to treatment

By admin
2 March 2022

RARE News

THE TAPS SUPPORT FOUNDATION

By admin
28 February 2022
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