RARE News

Research Tools Matching Grant Program now accepting applications!

By admin

25 October 2021

Weblinks and references

Digital health revolution and its transformative potential for rare diseases – WEBLINKS AND REFERENCES

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13 October 2021

RARE News

BBS UK participates in BBS global day to support individuals affected by Bardet Biedl syndrome

By admin

25 September 2021

RARE News

Niemann-Pick UK are set to launch ‘Invisible Me’ campaign and short film ‘Invisible Manners’

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14 September 2021

RARE News

Michael McGrath – CEO of The Muscle Help Foundation discusses academic research with University of Hertfordshire

By admin

13 August 2021

RARE News

Visual Snow Initiative: the charity on a mission to cure visual snow syndrome

By admin

12 July 2021

RARE News

All change at Genetic Disorders UK

By admin

2 June 2021

RARE News

It’s NOT Parkinson’s. Progressive supranuclear palsy and corticobasal degeneration

By admin

28 May 2021

RARE News

Non-profit partnership with Illumina aims to reduce the diagnostic odyssey for individuals living with a rare epilepsy

By admin

12 April 2021

RARE News

ShieldUs call to action for our learning disabilities community’s right to life

By admin

1 April 2021

RARE News

Research grant of over 2 million Euro offers new hope for children with rare condition Schinzel-Giedion syndrome

By admin

26 January 2021

Weblinks and references

References and signposting weblinks for: RARE Patient Partners edition 014

By admin

11 January 2021

RARE News

Reforming Rare Diseases: Why Genetic Alliance UK and Alexion are calling for urgent change to improve patient care

By admin

9 December 2020

RARE News

People with rare neurological conditions need a much better deal says new Neurological Alliance report

By admin

25 November 2020

RARE News

FSD call for innovative research projects in advanced therapies for Dravet syndrome

By admin

19 November 2020

RARE News

Illuminating the path to youth employment

By admin

18 November 2020

RARE News

Ground-breaking patient-led AKU study published in the Lancet

By admin

11 October 2020