Rare insights

Rare insights

The math is anything but encouraging

By CONTRIBUTOR

12 September 2024

Rare insights

Alex TLC Monthly Research Summaries

By CONTRIBUTOR

12 September 2024

Rare insights

Goal Attainment Scaling: delivering patient-centred clinical trials using personalised outcome measures

By admin

11 September 2024

Rare insights

NICE’s key developments in 2024 in summary

By CONTRIBUTOR

11 September 2024

Rare insights

Hope on the horizon: celebrating two years of Hereditary Brain Aneurysm Support and a bright future ahead

By CONTRIBUTOR

10 September 2024

Rare insights

Sickle cell disease: The urgent need for better care, increased research funding and better treatment options

By CONTRIBUTOR

8 September 2024

Rare insights

Find the power in you

By CONTRIBUTOR

4 September 2024

Rare insights

UK LSD Collaborative set to release new short—‘Hadid and I’

By admin

2 September 2024

Rare insights

Make your voice heard: Participate in the Rare Barometer Survey on the impact of living with a rare diseases on everyday life

By admin

2 September 2024

Rare insights

Sickle Cell Disease Association recognises Sickle Cell Awareness Month

By admin

2 September 2024

Rare insights

SMA Europe unites international voices in the new documentary ‘One Community. Shared Dreams’

By CONTRIBUTOR

31 August 2024

Rare insights

How ‘do’ we versus how ‘should’ we think about disease awareness activities?

By CONTRIBUTOR

30 August 2024

Rare insights

Exercise is medicine for people living with PSP & CBD

By admin

28 August 2024

Rare insights

Rare cancers: Sarcoma and your mental health

By CONTRIBUTOR

28 August 2024

Rare insights

Rare Patient Voice: Helping patients and caregivers share their voices

By CONTRIBUTOR

28 August 2024

Rare insights

CureDuchenne expands global initiatives andspreads awareness for World Duchenne Day 2024

By admin

23 August 2024

Rare insights

Finding Joy and Keeping Joy: Morven-May MacCallum’s 17-year battle with Lyme disease

By CONTRIBUTOR

21 August 2024

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