Rare insights

Rare insights

Together4RD: making ERN-industry collaboration a key pillar of the future in the rare disease research ecosystem

By CONTRIBUTOR

11 October 2023

Rare insights

A day in the life: navigating our way through the labyrinth of a newly discovered disease

By CONTRIBUTOR

9 October 2023

Rare insights

Arthur Suckow, former co-founder and chief executive officer of DTx Pharma, joins CMT Research Foundation board of directors

By admin

5 October 2023

Rare insights

Joshua Ruff: a journey of transformation through faith, family and farming

By CONTRIBUTOR

4 October 2023

Rare insights

NHL all-star Ryan Getzlaf and CureDuchenne raise more than $500,000 at 12th Annual Getzlaf Golf Shootout

By admin

29 September 2023

Rare insights

CMTUK charity is one of the first UK charities to move from subscription-based membership to a discretionary donation-based charity

By admin

28 September 2023

Rare insights

A Rare Find: upcoming comedy short wants to create conversation around newborn screening

By CONTRIBUTOR

27 September 2023

Rare insights

Sickle Cell Disease Association of America holds national convention

By admin

27 September 2023

Rare insights

World Orphan Drug Congress Europe 2023

By admin

27 September 2023

Rare insights

Cooking challenge to raise funds for muscular dystrophy charity gets the backing of celebrity chefs and celebrities from across the UK

By admin

26 September 2023

Rare insights

Living well with a rare disease: are we really supporting our community to achieve this?

By CONTRIBUTOR

25 September 2023

Rare insights

Living with cold agglutinin disease: Jörg’s story

By CONTRIBUTOR

25 September 2023

Rare insights

Congratulations to the 2023 winners of the Global Genes Open Science Data Challenge

By admin

22 September 2023

Rare insights

CureDuchenne launches the CureDuchenne Caregiver Course: a free virtual resource for Duchenne muscular dystrophy caregivers

By admin

21 September 2023

Rare insights

Mitochondrial disease awareness week: let’s move the needle towards effective treatments and cures

By CONTRIBUTOR

20 September 2023

Rare insights

EveryLife Foundation study measures economic impact of delayed diagnosis of rare diseases

By admin

18 September 2023

Rare insights

A day in the life: a glimpse into my life living with scleroderma

By CONTRIBUTOR

15 September 2023

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