Rare insights

Rare insights

Uncommon knowledge

By admin

13 September 2023

Rare insights

The physical, mental, and emotional toll of Charcot-Marie-Tooth disease: Joe Hogan’s story

By CONTRIBUTOR

13 September 2023

Rare insights

W. David Arnold, MD joins CMT Research Foundation Advisory Board

By admin

7 September 2023

Rare insights

Transitioning successfully from paediatric to adult care in Duchenne muscular dystrophy

By CONTRIBUTOR

6 September 2023

Rare insights

Sickle Cell Disease Association recognises Sickle Cell Awareness Month

By admin

5 September 2023

Rare insights

Dyne Therapeutics and CureDuchenne partner to give the gift of mobility to two local families

By admin

30 August 2023

Rare insights

Alpha-1: best practices for testing for this and other late-onset genetic diseases

By CONTRIBUTOR

30 August 2023

Rare insights

Million Dollar Bike Ride pilot grant program request for applications

By admin

24 August 2023

Rare insights

Life in the slow lane: finding strength after ataxia diagnosis

By CONTRIBUTOR

23 August 2023

Rare insights

NHL All-Star Ryan Getzlaf returns to the links for the 12th annual Getzlaf Golf Shootout on September 9 benefiting CureDuchenne

By admin

16 August 2023

Rare insights

Marie Curie: the inspiring legacy of a great woman of science and our RARE inspiration

By CONTRIBUTOR

16 August 2023

Rare insights

IGA issues position statement on non-comparable medicines

By admin

15 August 2023

Rare insights

Double dose of suffering: how the war in Ukraine has affected patients with rare diseases

By admin

14 August 2023

Rare insights

Richard’s RARE Ramblings: accommodating for rare conditions

By CONTRIBUTOR

9 August 2023

Rare insights

Landmarks illuminate pink and purple for National Eosinophilic Week

By admin

4 August 2023

Rare insights

Creld1 Warriors—bringing the scientific and parent community together

By CONTRIBUTOR

2 August 2023

Rare insights

A day in the life: graduation day for Raymond Huml’s son, Jon

By CONTRIBUTOR

25 July 2023

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