Rare insights

Rare insights

Three small research grants awarded

By admin

17 February 2023

Rare insights

CureDuchenne strengthens philanthropic business development with addition of vice president of corporate and donor relations

By admin

16 February 2023

Rare insights

Aaron Jackson: raising awareness of organ donation, and bringing hope to the transplant community

By CONTRIBUTOR

15 February 2023

Rare insights

Sure announced as headline sponsor for Parallel Windsor 2023

By admin

13 February 2023

Rare insights

Richard’s RARE Ramblings: FEAR!

By CONTRIBUTOR

8 February 2023

Rare insights

Shining the light on tube feeding

By admin

5 February 2023

Rare insights

A new year brings new opportunities: Global Genes – supporting patients, caregivers, advocates and organisations

By CONTRIBUTOR

1 February 2023

Rare insights

“Developing positive change in how we diagnose, treat and care for patients with a rare disease.” Rhetoric or reality?

By CONTRIBUTOR

1 February 2023

Rare insights

From SMA Europe: We are excited to announce that our OdySMA project is going live!

By admin

1 February 2023

Rare insights

Medics 4 Rare Diseases: reframing rare disease – one Instagram story at a time

By CONTRIBUTOR

25 January 2023

Rare insights

Raising awareness and celebrating people with craniofacial differences

By admin

24 January 2023

Rare insights

RARE Revolution Magazine publishes new impact report – The impact of RARE diseases on sibling experience

By admin

23 January 2023

Rare insights

Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes

By admin

20 January 2023

Rare insights

Know your sickle cell trait status, according to new campaign

By admin

20 January 2023

Rare insights

Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign

By admin

19 January 2023

Rare insights

Rare Disease Innovation & Partnership Summit

By admin

19 January 2023

Rare insights

Barriers to care in sickle cell disease: the reflections of La’Shardae Scott, social worker and RARE mother

By CONTRIBUTOR

18 January 2023

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