RARE News

RARE News

NCBRS Worldwide Foundation announces inaugural “UNITED AGAIN” Family Conference – UK 2024

By admin

23 April 2024

A day in the life

A day in the life: living with dyskeratosis congenita (DC)—Paula’s story

By CONTRIBUTOR

19 April 2024

Turning the tide for rare disease

Jenny Decker attempts to sail solo around the globe to raise awareness of Charcot-Marie-Tooth disease

By CONTRIBUTOR

15 April 2024

RARE News

DREAMS: a new Horizon Europe project brings hope to rare disease patients

By admin

12 April 2024

Industry Insights

As we enter a new financial year, how does the UK Budget affect the rare disease community?

By CONTRIBUTOR

10 April 2024

RARE News

Multidisciplinary expert panel explores the necessity to “shed light” on rare and undiagnosed diseases: an invitation to attend a live event at Harvard Medical School, in-person or virtually

By admin

10 April 2024

RARE News

AKU Society launches Global Patient Registry to drive research into ultra-rare disease alkaptonuria

By admin

10 April 2024

RARE News

New report: If Only You Knew

By admin

10 April 2024

RARE News

Nxera Pharma joins the World Orphan Drug Alliance

By admin

9 April 2024

RARE News

Eurordis to host 12th European Conference on Rare Diseases and Orphan Products (ECRD 2024)

By admin

4 April 2024

RARE News

Miami community comes together for CureDuchenne, raising nearly $2.5M since 2021

By admin

3 April 2024

RARE News

SMA Europe launches its 12th call for research

By admin

3 April 2024

RARE News

Sickle Cell Disease Association of America promotes Kevin Amado Jr.

By admin

27 March 2024

Letters

How can we get the patient heard by the regulators?

By CONTRIBUTOR

27 March 2024

RARE REV-inar

Eight challenges in developing rare disease therapies

By editor

25 March 2024

RARE News

Rare Disease Day 2024 – Call for greater awareness of X-linked adrenoleukodystrophy and cerebral adrenoleukodystrophy

By admin

20 March 2024

RARE News

Rare disease advocates learn to accelerate therapeutic development at 9th RARE Drug Development Symposium

By admin

19 March 2024

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