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Rare Revolution Magazine
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Rare insights

Rare insights

Enhancing clinical trial success through proactive patient advocacy and engagement

By CONTRIBUTOR
19 February 2025

Rare insights

ED Society calls for support amid financial struggles to secure sponsorship for key conference

By admin
17 February 2025

Rare insights

New groups extend support for carers of people living with rare brain disease

By admin
17 February 2025

Rare insights

Cure HSPB8: a new patient advocacy group for people living with HSPB8 myopathy

By admin
17 February 2025

Rare insights

Immunocompromised Association kicks off 2025 with safety and fun, with its inaugural virtual New Year’s Eve ball drop+

By admin
14 February 2025

Rare insights

The healing power of play: how starlight delivers happiness to kids living with rare diseases

By admin
12 February 2025

Rare insights

Blizzard Entertainment® Raises Over $2 Million for CureDuchenne through World of Warcraft ® charity pet program, funding lifesaving Duchenne muscular dystrophy research

By CONTRIBUTOR
12 February 2025

Rare insights

CureDuchenne announces educational events for families and caregivers of individuals with Duchenne or Becker muscular dystrophy

By admin
6 February 2025

Rare insights

The transatlantic partnership advancing breakthrough science into innovative treatments for rare diseases

By CONTRIBUTOR
5 February 2025

Rare insights

Neuro-orthoptics in progressive supranuclear palsy

By admin
1 February 2025

Rare insights

A blueprint to advance genomic medicine in Latin America

By CONTRIBUTOR
29 January 2025

Rare insights

Sepsis Research FEAT urges vigilance against sepsis this winter

By CONTRIBUTOR
28 January 2025

Rare insights

Landmarks illuminate purple and blue for feeding tube awareness

By CONTRIBUTOR
28 January 2025

Rare insights

Considering caregiver value at JP Morgan

By Paul Kidwell
22 January 2025

Rare insights

Rare disease champions: how Cycle Pharmaceuticals and their partner Inceptua are redefining pharmaceutical philanthropy and opening up access to novel therapies in low and middle-income regions

By Becky Pender, RARE Revolution
15 January 2025

Rare insights

Medics For Rare Disease – New year, new name, new strategy

By admin
10 January 2025

Rare insights

Rare Patient Voice has rewarded patients and caregivers $15 Million+ for their participation in research

By admin
9 January 2025
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