RARE News

RARE News

Rare Disease Nurse Network (RDNN) announces registration as a charity with the UK Charity Commission (Registered Charity Number 1199654).

By admin

22 August 2022

RARE News

Parents of Children with Narcolepsy Invited to Participate in Registry

By admin

8 August 2022

RARE News

Shining the light on eosinophilic diseases

By admin

5 August 2022

Charity & advocacy

ANGEL AID Unveils Raregivers™ Global Mental Health Initiative for Caregivers, Patients and Professionals

By CONTRIBUTOR

12 July 2022

RARE News

Gene People celebrates their first anniversary!

By admin

6 June 2022

RARE News

CureDuchenne hosts conversation with Pfizer to discuss opening of first U.S. sites in phase 3 trial of investigational gene therapy for ambulatory patients with Duchenne muscular dystrophy

By admin

26 May 2022

RARE News

Lace up to raise awareness of PSP and CBD: PSPA relaunches fun campaign to raise awareness of rare brain conditions progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD)

By admin

23 May 2022

RARE News

World Orphan Drug Alliance – combining forces to reach patients with rare diseases across the globe

By admin

23 May 2022

RARE News

The World Orphan Drug Congress USA Boston July 11-13

By admin

23 May 2022

RARE News

GARDIAN Registry for types 2 & 3 Gaucher disease is now open for registrations

By admin

17 May 2022

RARE News

Advocacy in Hemophilia Series: Event 1: Equity of Access in Hemophilia

By admin

12 May 2022

RARE News

Conference to pave the way for the next decade of rare diseases

By admin

11 May 2022

RARE News

National health charity CMTUK is to host annual conference on May 6th-7th

By admin

29 April 2022

RARE News

Undiagnosed Day 2022

By admin

28 April 2022

RARE News

California mental health initiative to fight hidden sickle cell symptoms

By admin

8 April 2022

RARE News

Global non-profit CureDuchenne announces futures national conference for the Duchenne muscular dystrophy community to be held May 27–29

By admin

1 April 2022

RARE News

Mental health and care navigation top list of needs for people living with neurodegenerative diseases at Adira Foundation congress

By admin

28 March 2022

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