Press releases

Press releases

Rare Community Network and Medics4RareDisease platform the underrepresented voices of the rare disease community for NHS England & Improvement meeting

By Rebecca Pender

26 October 2021

Press releases

Research Tools Matching Grant Program now accepting applications!

By Rebecca Pender

25 October 2021

Press releases

Reforming Rare Diseases: Why Genetic Alliance UK and Alexion are calling for urgent change to improve patient care

By Rebecca Pender

9 December 2020

Press releases

People with rare neurological conditions need a much better deal says new Neurological Alliance report

By Rebecca Pender

25 November 2020

Press releases

Illuminating the path to youth employment

By Rebecca Pender

18 November 2020

Press releases

Leading NIH expert on GNE myopathy joins the Neuromuscular Disease Foundation (NDF)

By Rebecca Pender

1 September 2020

Press releases

RARE Revolution Magazine and TREND Community are proud to announce their new partnership, working together to power up the voices of the youth rare disease community

By Rebecca Pender

24 June 2020

Press releases

Launching RARE Youth Revolution platform

By Rebecca Pender

18 June 2020

Press releases

A global gateway to a lasting legacy

By Rebecca Pender

17 June 2020

Press releases

Genomenon released genomic landscape for ectodermal dysplasias for Rare Disease Week

By Rebecca Pender

5 March 2020

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