RARE News

RARE News

MENA Congress for Rare Diseases 2025

By admin

29 October 2024

RARE News

CureDuchenne partners with Blizzard Entertainment and World of Warcraft for limited-time charity pet program

By admin

29 October 2024

RARE News

PRISMS Creates Awareness for Smith-Magenis Syndrome on Smith-Magenis Syndrome Awareness Day

By admin

28 October 2024

RARE News

Laura MacNeill named new CEO of CMT Research Foundation

By admin

23 October 2024

RARE News

It’s CMT Awareness Month during October, although less than 10% of the UK population have heard of CMT (according to a survey)

By admin

22 October 2024

RARE News

Accessia Health opens financial assistance program For individuals with rare blood disorder myelodysplastic syndromes

By admin

21 October 2024

RARE News

Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome

By CONTRIBUTOR

9 October 2024

RARE News

CMT Research Foundation surpasses $10 Million goal of ENDGAME Capital Campaign

By admin

1 October 2024

RARE News

Sickle Cell Disease Association of America Inc. holds convention in Atlanta

By admin

1 October 2024

RARE News

PSPA invites applications for small research projects looking into PSP & CBD

By admin

24 September 2024

RARE News

13th Annual Getzlaf Golf Shootout raises nearly $500,000 for CureDuchenne, welcoming Troy and Danielle Terry as new hosts

By admin

24 September 2024

RARE News

International Gaucher Alliance celebrates 30 years of international patient advocacy

By CONTRIBUTOR

23 September 2024

RARE News

UK LSD Collaborative set to release new short—‘Hadid and I’

By admin

2 September 2024

RARE News

Make your voice heard: Participate in the Rare Barometer Survey on the impact of living with a rare diseases on everyday life

By admin

2 September 2024

RARE News

Sickle Cell Disease Association recognises Sickle Cell Awareness Month

By admin

2 September 2024

RARE News

Exercise is medicine for people living with PSP & CBD

By admin

28 August 2024

RARE News

CureDuchenne expands global initiatives andspreads awareness for World Duchenne Day 2024

By admin

23 August 2024

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