RARE News

RARE News

EURORDIS Rare Barometer reveals mental health crisis in rare disease community

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3 July 2026

RARE News

Sickle Cell Disease Association of America Inc. appoints Akua Okunseinde to board

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3 July 2026

RARE News

SAVE THE DATE: 2nd International Clinical Care Symposium on Spinal Muscular Atrophy

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3 July 2026

RARE News

Charity reveals diagnosis for rare brain diseases hasn’t improved in 10 years

By admin

29 June 2026

RARE News

VictoryRoad studios acquires life-story rights of athlete turned advocate JD Slajchert for feature documentary set to debut on Victory Road+

By admin

29 June 2026

RARE News

New publication highlights 15 Years of TACT supporting neuromuscular drug development

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8 June 2026

RARE News

Age eligibility extended to 35yrs by UK’s leading experiential muscular dystrophy (MD) charity

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5 June 2026

RARE News

ARRE Foundation awards new research grant focused on ASXL3 disease mechanisms and future therapeutic development

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22 May 2026

RARE News

Global nonprofit CureDuchenne to host FUTURES National Conference for the Duchenne and Becker muscular dystrophy community

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5 May 2026

RARE News

Navigating the future: iDR26, the 2026 International Drug Repurposing Conference

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5 May 2026

RARE News

Novartis receives EMA CHMP positive opinion for Itvisma, gene therapy for children two years and older, teens, and adults with spinal muscular atrophy (SMA)

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24 April 2026

RARE News

Research shows eye movement tests can help clinicians spot PSP earlier

By admin

17 April 2026

RARE News

Life’s a Polyp Foundation celebrates grand launch for Colorectal Cancer Awareness Month

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23 March 2026

RARE News

Evelina London Children’s Hospital joins the INPDR Clinician Reported Database

By admin

6 March 2026

RARE News

5th International Scientific Congress on Spinal Muscular Atrophy (SMA)

By admin

2 March 2026

RARE News

OpalMedica launches patient platform to help shape the future of rare disease detection

By admin

28 February 2026

RARE News

RDCom: The new clinical AI that triples diagnostic effectiveness in Rare Diseases

By admin

28 February 2026

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