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Charity & advocacy
Charity & advocacy
October is CMT awareness month in the UK
By Rebecca Pender
22 October 2021
Charity & advocacy
Applications open for Duchenne Patient Academy 2021
By Rebecca Pender
18 October 2021
Charity & advocacy
Celebrating a year of mental health support for men affected by rare conditions!
By Rebecca Pender
30 June 2021
Charity & advocacy
Why care for carers?
By Rebecca Pender
31 May 2021
Charity & advocacy
My journey with multiple sclerosis and advocacy
By Rebecca Pender
28 May 2021
Charity & advocacy
Personal circumstances lead the way to a passionate career in nephrology research
By Rebecca Pender
11 October 2020
Charity & advocacy
PTC Therapeutics’ 2020 STRIVE awards for Duchenne muscular dystrophy recognise four patient advocacy organisations
By Rebecca Pender
30 September 2020
Charity & advocacy
Scottish based liver charity PBC foundation celebrates success of its first global online event
By Rebecca Pender
29 September 2020
Charity & advocacy
CMT Research Foundation fighting to shorten the time to diagnosis and put CMT on the radar of pharma
By Rebecca Pender
24 September 2020
Charity & advocacy
A race against time
By Rebecca Pender
18 August 2020
Charity & advocacy
The Albinism Fellowship UK and Ireland are proud to support a campaign to end discrimination within international blind sport
By Rebecca Pender
5 August 2020
Charity & advocacy
“I Stay Home for RARE” financial assistance campaign launched by Living in the Light.
By Rebecca Pender
8 July 2020
Charity & advocacy
Kawasaki disease UK
By Rebecca Pender
1 July 2020
Charity & advocacy
Global Commission progresses technology health pilots to accelerate time to diagnosis for children with a rare disease
By Rebecca Pender
29 June 2020
Charity & advocacy
Nystagmus awareness day – 20 June 2020
By Rebecca Pender
17 June 2020
Charity & advocacy
Welcome new boost for mums and dads of young children with albinism
By Rebecca Pender
11 June 2020
Charity & advocacy
Local charity thanks the north-east for the gift of time
By Rebecca Pender
5 June 2020
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