Rare insights

Rare insights

£1.5 million new fund launched to ‘Help the Heart’

By admin

27 February 2024

Rare insights

Glasgow Children’s Hospital Charity: flying the flag for rare disease families year round

By CONTRIBUTOR

27 February 2024

Rare insights

CureDuchenne hosts “Champions in Miami” event on March 9 to help find a cure for Duchenne muscular dystrophy

By admin

23 February 2024

Rare insights

Guiding Grayson: a family’s fight to advocate, educate and save their son, Grayson, from CLN3 Batten Disease

By CONTRIBUTOR

21 February 2024

Rare insights

CMT Research Foundation partners to advance study of CMT type 1J by Dr Stephan Zuchner

By admin

21 February 2024

Rare insights

Dr Wendy Chung and Simons Searchlight: pioneering research into genes that cause rare neurodevelopmental disorders

By CONTRIBUTOR

21 February 2024

Rare insights

A day in the life: living with Bardet-Biedl syndrome—Tessa’s story

By CONTRIBUTOR

16 February 2024

Rare insights

Rare Disease Awareness Day Calendar

By CONTRIBUTOR

14 February 2024

Rare insights

Don’t let your condition define you! David’s journey with stiff person syndrome

By CONTRIBUTOR

14 February 2024

Rare insights

Rare Disease Day 2024: Sheela Upadhyaya previews some of the events taking place across the world

By CONTRIBUTOR

14 February 2024

Rare insights

The UK Rare Diseases Framework: Sheela Upadhyaya reflects on recent progress across the UK

By CONTRIBUTOR

12 February 2024

Rare insights

Love isn’t rare—Ken To’s journey with Huntington’s disease

By CONTRIBUTOR

11 February 2024

Rare insights

MEF2C Foundation & MUSC launch program to develop MEF2C therapeutics

By admin

9 February 2024

Rare insights

Congenital muscular dystrophy: Kelly and Avery’s mission to challenge perceptions of disability

By CONTRIBUTOR

7 February 2024

Rare insights

National Tay-Sachs & Allied Diseases Association hosts first of its kind drug development meeting for GM2

By admin

2 February 2024

Rare insights

Get Ready to #ShowYourStripes for Rare Disease Day 2024 29th February: the rarest day of the year!

By admin

1 February 2024

Rare insights

If you want to make God laugh, tell him about your plans

By CONTRIBUTOR

31 January 2024

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