Rare insights

Rare insights

Applications open for Duchenne Patient Academy 2021

By CONTRIBUTOR

18 October 2021

Rare insights

Digital health revolution and its transformative potential for rare diseases – WEBLINKS AND REFERENCES

By admin

13 October 2021

Rare insights

Buddhism, yoga and meditation: how Dee Cowburn is following the path to mindfulness to guide her through life’s darker times

By CONTRIBUTOR

8 October 2021

Rare insights

Relationships can be tricky in a world of rare disease

By CONTRIBUTOR

8 October 2021

Rare insights

Sholto’s war

By CONTRIBUTOR

8 October 2021

Rare insights

Parenting superpower series – stay listening

By CONTRIBUTOR

7 October 2021

Rare insights

Every day is a gift: interview with Dr Al Freedman RARE dad and counselling psychologist

By CONTRIBUTOR

7 October 2021

Rare insights

Bernd’s brave new world

By CONTRIBUTOR

7 October 2021

Rare insights

Fatherhood and fighting for change in the world of rare disease

By CONTRIBUTOR

7 October 2021

Rare insights

TWIN RUN: Dutch dad raising awareness of twin complications

By CONTRIBUTOR

7 October 2021

Rare insights

A mum on a mission to make the world a more inclusive place for RARE children

By CONTRIBUTOR

7 October 2021

Rare insights

Reframing the conversation around grief

By CONTRIBUTOR

6 October 2021

Rare insights

Realising our workplace vision

By CONTRIBUTOR

6 October 2021

Rare insights

RARE Revolution’s bereavement survey

By CONTRIBUTOR

6 October 2021

Rare insights

RARE Employment Q&A with Police Inspector David Singleton

By CONTRIBUTOR

6 October 2021

Rare insights

Professional careers and rare disease – finding a balance that works

By CONTRIBUTOR

6 October 2021

Rare insights

Parenting superpower series – play listening

By CONTRIBUTOR

6 October 2021

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