Rare insights

Rare insights

Bridging the gap: differing perceptions of generalised myasthenia disease burden

By CONTRIBUTOR

11 December 2024

Rare insights

Becker muscular dystrophy patients find hope in building a community

By CONTRIBUTOR

4 December 2024

Rare insights

New study reveals severe lack of support for Dravet Syndrome carers

By admin

3 December 2024

Rare insights

flok, pioneering patient-led research for inherited metabolic disorders (IMD)

By CONTRIBUTOR

3 December 2024

Rare insights

Bridging the gap: health inequalities and rare diseases

By CONTRIBUTOR

29 November 2024

Rare insights

Rare disease—self-advocacy and getting needs met!

By CONTRIBUTOR

28 November 2024

Rare insights

For George: The MVA Society

By CONTRIBUTOR

20 November 2024

Rare insights

Challenges of caring for a rare disease patient—a discussion

By admin

20 November 2024

Rare insights

Access to spinal muscular atrophy (SMA) treatment in Denmark: a success story of how persistence can win in the end

By CONTRIBUTOR

15 November 2024

Rare insights

Real-world data in EAPs: makes sense for rare diseases

By CONTRIBUTOR

13 November 2024

Rare insights

DEBRA partners with NHS England to better understand epidermolysis bullosa (EB)

By admin

11 November 2024

Rare insights

HBA Support achieves registered charity status

By admin

7 November 2024

Rare insights

My journey with adrenocortical cancer: from diagnosis to advocacy

By CONTRIBUTOR

6 November 2024

Rare insights

The Acromegaly Community: An international haven for people living with acromegaly

By CONTRIBUTOR

1 November 2024

Rare insights

DREAMS: a year of innovation and progress in the quest for neuromuscular disease therapies

By admin

31 October 2024

Rare insights

Walk with WAPO through the Experiences of People Living with Acromegaly

By admin

30 October 2024

Rare insights

MENA Congress for Rare Diseases 2025

By admin

29 October 2024

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