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Charity & advocacy
Charity & advocacy
Hope on the horizon: celebrating two years of Hereditary Brain Aneurysm Support and a bright future ahead
By CONTRIBUTOR
10 September 2024
Turning the tide for rare disease
Sickle cell disease: The urgent need for better care, increased research funding and better treatment options
By CONTRIBUTOR
8 September 2024
Patient voice
Find the power in you
By CONTRIBUTOR
4 September 2024
RARE News
UK LSD Collaborative set to release new short—‘Hadid and I’
By admin
2 September 2024
RARE News
Make your voice heard: Participate in the Rare Barometer Survey on the impact of living with a rare diseases on everyday life
By admin
2 September 2024
RARE News
Sickle Cell Disease Association recognises Sickle Cell Awareness Month
By admin
2 September 2024
Charity & advocacy
SMA Europe unites international voices in the new documentary ‘One Community. Shared Dreams’
By CONTRIBUTOR
31 August 2024
Industry Insights
How ‘do’ we versus how ‘should’ we think about disease awareness activities?
By CONTRIBUTOR
30 August 2024
RARE News
Exercise is medicine for people living with PSP & CBD
By admin
28 August 2024
Patient voice
Rare cancers: Sarcoma and your mental health
By CONTRIBUTOR
28 August 2024
Turning the tide for rare disease
Rare Patient Voice: Helping patients and caregivers share their voices
By CONTRIBUTOR
28 August 2024
RARE News
CureDuchenne expands global initiatives andspreads awareness for World Duchenne Day 2024
By admin
23 August 2024
Patient voice
Finding Joy and Keeping Joy: Morven-May MacCallum’s 17-year battle with Lyme disease
By CONTRIBUTOR
21 August 2024
Patient voice
Looking for the positives during hard times: visual snow syndrome
By CONTRIBUTOR
21 August 2024
RARE News
Ladies Luncheon Newport Beach to debut at Shady Canyon Golf Club on October 15 benefiting CureDuchenne
By admin
20 August 2024
A day in the life
#JosiahStrong: Living with familial cold autoinflammatory syndrome—one year on
By CONTRIBUTOR
14 August 2024
RARE News
Introducing the Vascular Voice Network
By admin
12 August 2024
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