Rare insights

Rare insights

Aortic Hope: connecting hearts one beat at a time

By CONTRIBUTOR

15 June 2026

Rare insights

One voice reaches RARE everywhere!

By CONTRIBUTOR

10 June 2026

Rare insights

New publication highlights 15 Years of TACT supporting neuromuscular drug development

By admin

8 June 2026

Rare insights

Age eligibility extended to 35yrs by UK’s leading experiential muscular dystrophy (MD) charity

By admin

5 June 2026

Rare insights

Exploring the impact of wish granting in paediatric care

By CONTRIBUTOR

31 May 2026

Rare insights

Walking together for CPA Awareness Day

By admin

28 May 2026

Rare insights

Supporting rare disease caregivers at work shouldn’t be a rare occurrence

By Paul Kidwell

28 May 2026

Rare insights

Parkinson’s disease and the silent burden on Black families

By CONTRIBUTOR

27 May 2026

Rare insights

Bridging the gap: the landscape and management of haemophilia B in Saudi Arabia

By Emma Bishop, RARE Revolution

27 May 2026

Rare insights

ARRE Foundation awards new research grant focused on ASXL3 disease mechanisms and future therapeutic development

By admin

22 May 2026

Rare insights

CureDuchenne appoints Lidia Gardner, PhD, EMBA, as vice president of clinical and medical affairs to advance patient-centered care, research, and strategic partnerships

By admin

22 May 2026

Rare insights

Fighting for life and hope

By CONTRIBUTOR

20 May 2026

Rare insights

The science of hope: a father’s race against the irreversible

By CONTRIBUTOR

13 May 2026

Rare insights

Listening to lead: how rare disease communities guide innovation

By CONTRIBUTOR

13 May 2026

Rare insights

Global nonprofit CureDuchenne to host FUTURES National Conference for the Duchenne and Becker muscular dystrophy community

By admin

5 May 2026

Rare insights

Navigating the future: iDR26, the 2026 International Drug Repurposing Conference

By admin

5 May 2026

Rare insights

From a moment, to momentum: Why Undiagnosed Day 2026 is shaping what happens next

By CONTRIBUTOR

29 April 2026

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