Rare insights

Rare insights

CureDuchenne partners with Blizzard Entertainment and World of Warcraft for limited-time charity pet program

By admin

29 October 2024

Rare insights

PRISMS Creates Awareness for Smith-Magenis Syndrome on Smith-Magenis Syndrome Awareness Day

By admin

28 October 2024

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Laura MacNeill named new CEO of CMT Research Foundation

By admin

23 October 2024

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A Day in the Life: living with sickle cell anaemia-Naomi’s story

By CONTRIBUTOR

23 October 2024

Rare insights

It’s CMT Awareness Month during October, although less than 10% of the UK population have heard of CMT (according to a survey)

By admin

22 October 2024

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Accessia Health opens financial assistance program For individuals with rare blood disorder myelodysplastic syndromes

By admin

21 October 2024

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Bringing light into the world: the father running over 200 miles for Angelman Syndrome

By CONTRIBUTOR

16 October 2024

Rare insights

NF1 breast cancer awareness campaign: Andrea’s story

By Emma Bishop

15 October 2024

Rare insights

NF1 breast cancer awareness campaign: Leading NF1 expert Professor Gareth Evans calls for earlier screening

By Emma Bishop

15 October 2024

Rare insights

NF1 breast cancer awareness campaign: Caitriona Plunkett empowers young women with NF1 to prioritise breast health

By Emma Bishop

15 October 2024

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NF1 breast cancer awareness campaign: Sharon’s story

By Emma Bishop

15 October 2024

Rare insights

NF1 breast cancer awareness campaign: Jodie’s story

By Emma Bishop

15 October 2024

Rare insights

A day in the life of a PSPA helpline manager

By CONTRIBUTOR

14 October 2024

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Research into diagnostic tests celebrated at international conference

By CONTRIBUTOR

9 October 2024

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Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome

By CONTRIBUTOR

9 October 2024

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Understanding palliative care

By CONTRIBUTOR

9 October 2024

Rare insights

What is pain?

By CONTRIBUTOR

9 October 2024

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