Rare insights

Rare insights

Cure HSPB8: a new patient advocacy group for people living with HSPB8 myopathy

By admin

17 February 2025

Rare insights

Immunocompromised Association kicks off 2025 with safety and fun, with its inaugural virtual New Year’s Eve ball drop+

By admin

14 February 2025

Rare insights

The healing power of play: how starlight delivers happiness to kids living with rare diseases

By admin

12 February 2025

Rare insights

Blizzard Entertainment® Raises Over $2 Million for CureDuchenne through World of Warcraft ® charity pet program, funding lifesaving Duchenne muscular dystrophy research

By CONTRIBUTOR

12 February 2025

Rare insights

CureDuchenne announces educational events for families and caregivers of individuals with Duchenne or Becker muscular dystrophy

By admin

6 February 2025

Rare insights

The transatlantic partnership advancing breakthrough science into innovative treatments for rare diseases

By CONTRIBUTOR

5 February 2025

Rare insights

Neuro-orthoptics in progressive supranuclear palsy

By admin

1 February 2025

Rare insights

A blueprint to advance genomic medicine in Latin America

By CONTRIBUTOR

29 January 2025

Rare insights

Sepsis Research FEAT urges vigilance against sepsis this winter

By CONTRIBUTOR

28 January 2025

Rare insights

Landmarks illuminate purple and blue for feeding tube awareness

By CONTRIBUTOR

28 January 2025

Rare insights

Considering caregiver value at JP Morgan

By CONTRIBUTOR

22 January 2025

Rare insights

Rare disease champions: how Cycle Pharmaceuticals and their partner Inceptua are redefining pharmaceutical philanthropy and opening up access to novel therapies in low and middle-income regions

By Becky Pender

15 January 2025

Rare insights

Medics For Rare Disease – New year, new name, new strategy

By admin

10 January 2025

Rare insights

Rare Patient Voice has rewarded patients and caregivers $15 Million+ for their participation in research

By admin

9 January 2025

Rare insights

Blood Sword by the Duncan Brothers: A mythical sword-wielding comedy to raise awareness of an underdiagnosed genetic condition

By CONTRIBUTOR

8 January 2025

Rare insights

“Having SDS shouldn’t hold you back, it shouldn’t define who you are.”

By CONTRIBUTOR

18 December 2024

Rare insights

Looking backwards, looking forwards

By CONTRIBUTOR

11 December 2024

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