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Posts by CONTRIBUTOR

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CONTRIBUTOR

Sondra Butterworth: Why building trust is the cornerstone of PPIE

By CONTRIBUTOR

25 August 2025

The trust–success ratio: Why building trust is the cornerstone of PPIE (Public Patient Participation Inclusive and Engagement) – A patient’s perspective

By CONTRIBUTOR

25 August 2025

incognito: the secret life of a…rare disease board trustee

By CONTRIBUTOR

25 August 2025

Virginie Bros-Facer of EURORDIS – Rare Diseases Europe

By CONTRIBUTOR

25 August 2025

Putting you in the heart of the rare community – Sjögren’s UK

By CONTRIBUTOR

18 August 2025

Annie Kennedy of EveryLife Foundation for Rare Diseases

By CONTRIBUTOR

11 August 2025

incognito: the secret life of a…community CEO

By CONTRIBUTOR

11 August 2025

Putting you in the heart of the rare community – CDKL5 UK

By CONTRIBUTOR

4 August 2025

Understanding the true cost of clinical trials

By CONTRIBUTOR

4 August 2025

Putting you in the heart of the rare community – CDKL5 UK

By CONTRIBUTOR

4 August 2025

Sophie Turner of Empowered By Us

By CONTRIBUTOR

28 July 2025

incognito: the secret life of an…advocacy group CEO

By CONTRIBUTOR

28 July 2025

Putting you in the heart of the rare community – Dravet Syndrome Foundation

By CONTRIBUTOR

21 July 2025

Megan Maack of Childhood Dementia Initiative

By CONTRIBUTOR

14 July 2025

incognito: the secret life of a…research CEO

By CONTRIBUTOR

14 July 2025

Health and humanity – why holistic care must be a shared industry responsibility

By CONTRIBUTOR

7 July 2025

Putting you in the heart of the rare community – CLOVES Syndrome Community

By CONTRIBUTOR

7 July 2025

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