Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Home
IN the know
INnovation
IN motion
Women IN RARE
INcognito
IN the thick of it
INsights
IN the spotlight
To use more accessibility options, please use a different browser such as Chrome or Firefox.
Posts by CONTRIBUTOR
About
CONTRIBUTOR
Putting you in the heart of the rare community – National PKU Alliance
By CONTRIBUTOR
23 June 2025
incognito: the secret life of a…healthcare communications CEO
By CONTRIBUTOR
7 June 2025
Putting you in the heart of the rare community – Koolen-de Vries Syndrome Foundation
By CONTRIBUTOR
7 June 2025
Jenny Ousbey of OVID Health
By CONTRIBUTOR
7 June 2025
Jenifer Ngo Waldrop of Rare Disease Diversity Coalition (RDDC)
By CONTRIBUTOR
5 June 2025
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset