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New IN this week

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Huntington’s disease: an important moment for treatment development

By Karen Roberts, RARE Revolution
12 October 2026

Sarah Baker, CEO CamRARE

By CONTRIBUTOR
12 October 2026

Putting you in the heart of the rare community – SITUS Foundation

By CONTRIBUTOR
5 October 2026

LEO Pharma: building a rare dermatology pipeline

By Karen Roberts, RARE Revolution
5 October 2026

IN the know

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How the state values a life

By Henry Burkitt, Oxygen Strategy
28 September 2026

Could disease-anchored doctorates reshape rare research?

By Karen Roberts, RARE Revolution
28 September 2026

Will life sciences growth translate into opportunities for graduates?

By Karen Roberts, RARE Revolution
21 September 2026

Moving clinical trials from recruitment to readiness

By Keith Berelowitz, trialport
14 September 2026

INnovation

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arcoris bio: biomarker detection kits to reach new markets

By Karen Roberts, RARE Revolution
7 September 2026

New cell atlas could unlock clues about disease

By Karen Roberts, RARE Revolution
31 August 2026

Cytochroma making a splash with Morgan Stanley at Time Square

By Nicola Miller, RARE Revolution
15 December 2025

What AI innovations like China’s DeepSeek could mean for rare diseases

By Julie Penfold, RARE Revolution
8 December 2025

Women IN RARE

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Sarah Baker, CEO CamRARE

By CONTRIBUTOR
12 October 2026

Lara Bloom, president and CEO of The Ehlers-Danlos Society

By CONTRIBUTOR
21 September 2026

Patricia Weltin of Beyond the Diagnosis

By CONTRIBUTOR
15 December 2025

Martine Pergent of IPOPI

By CONTRIBUTOR
1 December 2025

INcognito

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incognito: the secret life of a…Biotech executive with the heart of an advocate

By CONTRIBUTOR
7 September 2026

incognito: the secret life of a…rare disease board trustee

By CONTRIBUTOR
25 August 2025

incognito: the secret life of a…community CEO

By CONTRIBUTOR
11 August 2025

incognito: the secret life of an…advocacy group CEO

By CONTRIBUTOR
28 July 2025

IN the thick of it

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Putting you in the heart of the rare community – SITUS Foundation

By CONTRIBUTOR
5 October 2026

Putting you in the heart of the rare community – PTLS Hope Research Foundation

By CONTRIBUTOR
14 September 2026

Putting you in the heart of the rare community – SMS Foundation UK

By CONTRIBUTOR
24 November 2025

Voices united: addressing the unmet needs of patient advocacy groups

By Emma Bishop, RARE Revolution
10 November 2025

IN person

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ISPOR Europe 2025, Tuesday 11th November—view from a newbie

By Rebecca Stewart, RARE Revolution
17 November 2025

The real conversations at World Orphan Drug Congress Europe

By Rebecca Stewart, RARE Revolution
5 November 2025

IN the pipeline

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Huntington’s disease: an important moment for treatment development

By Karen Roberts, RARE Revolution
12 October 2026

LEO Pharma: building a rare dermatology pipeline

By Karen Roberts, RARE Revolution
5 October 2026

Releasing the brake: how an oral therapy could transform life with achondroplasia

By Nicola Miller, RARE Revolution
20 April 2026

Parent-led: the FOXG1 Research Foundation’s path from diagnosis to drug development

By Nicola Miller, RARE Revolution
30 March 2026
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