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RARE and social
Rare Revolution Magazine
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It's time to turn the tide!

To bring about a dramatic and wide reaching change in conditions and attitudes for the RARE disease community.

To bring about a dramatic and wide reaching change in conditions and attitudes for the RARE disease community.

Digital Spotlights

Shining a light on IgA nephropathy (IgAN)

5 November 2025

A day in the life

A day in the life: reconciling grief and gratitude

By CONTRIBUTOR
17 December 2025

A tough year

By Nicola Redfern
10 December 2025

From silence to support: the journey of CS ECHO and Cowden syndrome

By CONTRIBUTOR
10 December 2025

Without FDA flexibility for rare diseases our daughter’s future is at risk

By CONTRIBUTOR
8 December 2025

Patient organisation Cure HSPB8 adopts new name: Cure MFM13

By CONTRIBUTOR
8 December 2025

RARE News

The Muscle Help Foundation and its patron, Lorraine Kelly, call on supporters to donate in the UK’s biggest public fundraiser, the ‘Big Give Christmas Challenge’

By CONTRIBUTOR
8 December 2025

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